I have resisted getting an MRI for a year now, and it seems that doctors don’t get why. It’s not about the actual process. Yes, I hate lying in that tube for up to 3 1/2 to 4 hours for all 3 MRIs but it is the results I hate.
Overall, it does not change facts. No matter what the MRI says, I am in just as much pain or have just as much trouble walking. But it can be so demoralizing.
My last MRI was 2 years ago and I remember reading it. It was the first time they used terms like atrophied brain and atrophied cerebellum. The idea of my brain shrinking really hit me hard. As if it was withering away slowly. I was also taken aback by the fact that in a matter of 2 years my lesions not only doubled in size but increased 6-8 times in size, and the number of lesions increased by 50%.
For anyone dealing with MS, tests can often times be demoralizing. We focus so much on how to deal with the pain and symptoms, but not on the emotional aspects of it. On the fact that our body is attacking itself, attacking the brain, the very center of what makes our body function. How do you wrap your brain around… well what is happening to your brain?